By Heather O.
I have debated whether or not I wanted to post this on MMW, but I decided in the name of “raising awareness” I would pass on the address of a new blog dedicated to PKD, a.k.a. Polycystic Kidney Disease. Polycystic Kidney Disease is the most common genetic, life threatening disease affecting more than 600,000 Americans and an estimated 12.5 million people worldwide - regardless of sex, age, race or ethnic origin. In fact, PKD affects more people than cystic fibrosis, muscular dystrophy, hemophilia, Down syndrome and sickle cell anemia — combined.
The blog is called Living with PKD.
Who runs this blog, you may ask?
I was diagnosed with PKD 6 months ago, and haven’t quite known what to do with it, really. Then I attended the PKD Foundation conference last weekend, and realized that there are few cohesive online support groups for patients with PKD. There are some, but not many, and no blogs that I could find. I’m lousy at fundraising, I stink at organizing walks, and I certainly ain’t no “chapter leader”, but I am good (read ‘mildly obsessed’) with blogging, and if running and maintaining a blog can help raise awareness, well, that’s something I can do. I threw out the thought to a couple of folks at the conference, and they seemed to think it was a good idea. So, I started one. There you go.
I probably will not blog about PKD here at Mommy Wars. I think this should remain a place where we primarily discuss issues facing us as women trying to raise our families in righteousness. But I felt that I would be remiss in my “raising awareness” duties if I didn’t take advantage of an established readership to talk about PKD. Yes, ladies, I am bodly, shamelessly using you. Sorry.
I don’t expect that everybody here will actually be interested in a blog about PKD. After all, there are few things more depressing than reading about a disease you don’t have. But, like I said, it’s a start in introducing people to this very common yet largely unheard of condition. So, um, I guess this is the part where I say “Tell your friends”, and especially if you know somebody with PKD. Maybe they will thank you for it.
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